Transitions of Care

A Successful Approach to Managing Pediatric to Adult Transitions of Care

Transitioning from a pediatric to an adult provider can be a challenge for all members of the care team. Transitions toolkits have been developed for Type 1 Diabetes, Growth Hormone DeficiencyTurner Syndrome and Transgender Health to help ease this transition.

Type 1 Diabetes

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Growth Hormone Deficiency

  • Assessment of Patient Skills PDF: A checklist to help the pediatric care team begin a conversation with the patient about what they need to do to successfully manage their growth hormone deficiency without parental supervision.
  • Patient Self-assessment of Worries, Concerns, and Burdens PDF: An assessment of relevant psycho-social, familial, and cognitive factors that the adult care team should be aware of when caring for their new patient.
  • Clinical Summary PDF: A template for the pediatric care provider to summarize the patient’s medical record, which is then transferred to the adult care provider.
  • Recommended Approach to Receiving a New Patient: A resource for the adult provider and includes information on how to begin the final phase of the transition.
  • Dosing Guide PDF: An overview of dosing strategies for patients with growth hormone deficiency.

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Turner Syndrome

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Transgender Health

  • Provider Assessment of Skill Set PDF: This tool helps pediatricians to assess a young adult’s knowledge and skills regarding transgender medical care and its management in preparation for their transition to adult care providers.
  • Transition Readiness Assessment PDF: An assessment tool for adult care providers to identify gaps in self-care knowledge and skills, and to discuss any of these issues with their patients to ensure optimal management.
  • Clinical Summary and Transfer Record PDF: A form to ensure that all essential clinical information related to the patient is included in their medical record upon transfer to adult practice.
  • Dosing Standards for Pubertal Suppression and Sex Steroid Hormones in Transgender Youth PDF: A guide for both pediatric and adult providers with an overview of dosing strategies for patients with Gender Incongruence/Gender Dysphoria.
  • Planning for Adult Practices PDF: This document provides recommendations for adult endocrinology providers to aid in the transition of young transgender adults.
  • Planning for Pediatric Practices PDF: This document provides recommendations for pediatric endocrinology providers to aid in the transition of young transgender adults.
  • Adult Care Recommendations PDF: A chart to inform patients about which provider should be responsible for conducting various screenings and other assessments needed in adulthood.
  • Patient Resource PDF: This patient education infographic serves as a starting place to educate patients on what they will need to transition care.

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