Advocacy

Advocacy in Action

May 29, 2020

Insulin Pricing

Endocrine Society Advocates for Access to Affordable Insulin – On May 26 the White House announced that 88 insurance companies and all three big insulin manufacturers would take part in a new payment pilot capping Medicare patients' insulin costs at $35 a month.  The pilot would make these plans available during open enrollment this fall, and participation will be voluntary for insurance companies and drug makers. The Centers for Medicare and Medicaid Services (CMS) said over 1,750 standalone Part D prescription drug plans and Medicare Advantage plans are set to participate. 

President Donald Trump spoke about the announcement during a Rose Garden speech. Prior to the event, CMS reached out to the Endocrine Society and asked us to share examples of Medicare beneficiaries who do not have access to affordable insulin.  We were able to provide several examples, one used by the CMS Administrator in her remarks about why addressing the high cost of insulin is necessary. 

While House Republicans celebrated the announcement, others noted the program was modest at best and described it as a small change to Medicare that will likely only limited discount on insulin for a small subset of the 60 million seniors with Medicare coverage. We continue to advocate that Congress and the Administration address the high cost of insulin and welcome opportunities to continue to raise the visibility of the problem.  We will continue to discuss with industry and policy makers ways to increase access to affordable insulin that will benefit Medicare beneficiaries and others and have included the need to eliminate patient cost sharing for insulin in our priorities for COVID-19 relief legislation. 

COVID-19 Relief Legislation 

Endocrine Society Advocates for Physicians, Researchers & Patients - Our latest information from the Hill on the next phase of COVID-19 relief legislation is that there is no firm timeline or details about a bipartisan package. We are hearing that negotiations between Republicans and Democrats have not yet begun. Senate Majority Leader Mitch McConnell (R-KY) has continued to state he is taking time to evaluate the needs. Meanwhile, we continue to share our priorities for researchers, clinicians and patients with Congress and the Administration. 

TAKE ACTION: Join our online advocacy campaign to urge Congress to: 

  • Alleviate the critical shortage of Personal Protective Equipment (PPE); 
  • Support emergency supplemental research funding on COVID-19 to addresses endocrine research priorities related to the disease 
  • Provide patients with a 90-day supply of diabetes test strips, and 
  • Eliminate patient cost sharing for insulin.   

Funding for NIH

Endocrine Society Advocates for Increase in Funding for NIH and Emergency Supplemental Funding for COVID-19 Research at NIDDK – Last month Representatives Diana DeGette (D-CO) and Fred Upton (R-MI) led and effort in the House of Representatives to try to secure $26 billion in an upcoming COVID-19 Emergency Supplemental Appropriations Bill to help sustain our nation’s federally funded research enterprise. 175 Members of the House signed onto the Dear Colleague Letter in support of this initiative House letter sent on April 29. The Endocrine Society endorsed this effort.  Last week a similar effort in the Senate was organized by Senators Ed Markey (D-MA) and Thom Tillis (R-NC), which resulted in 33 Senators signing onto a comparable Dear Colleague letter Senate letter sent on May 4. It is estimated that NIH’s portion of the proposed $26 billion for research is between $9 and $10 billion. We continue to advocate for increased funding for NIH in FY 2020. You can read our testimony to the Appropriations Committee. In addition, we support emergency supplemental funding for NIH and have created a new online campaign advocating for emergency funding for NIDDK COVID-19 research.  

Transgender Health

Endocrine Society Advocates to Protect Access to Care for LGBTQIA+ - A group of 31 Senate Democrats sent a letter to HHS Secretary Alex Azar urging the administration to withdraw a proposal that would finalize a proposed rule for implementing Section 1557 of the Affordable Care Act. Section 1557 prohibits discrimination on the basis of race, color, national origin, sex, age disability and language proficiency in any health care program or facility that receives federal funding.  In the letter the Senators say that the changes in the proposed rule would undermine health care anti-discrimination protections for LGBTQIA+ people, women, people with limited English proficiency, people with disabilities and others. They note that rolling back these protections would be harmful at any time, but that finalizing the rule during the ongoing pandemic could severely reduce many Americans' access to health care. We have opposed the Administration’s rule and argued that if finalized it would threaten women and transgender individuals’ access to care and health insurance, create confusion among providers and patients about their rights and obligations, and promote discrimination against vulnerable populations that already struggle to access health car

Our Latest Policy Letters

Last Updated:
Take Action

Make Your Voice Heard

Take Action
Join us in lending your voice to our online advocacy to support our policy priorities, endocrinology, and science. Contact your U.S representatives or European Members of Parliament through our online platform. Take action and make a difference today.

Join us in lending your voice to our online advocacy to support our policy priorities, endocrinology, and science. Contact your U.S representatives or European Members of Parliament through our online platform. Take action and make a difference today.

Member Spotlight

Advocating for Better Policies and Regulations

Barbara Demeneix, B.Sc., PhD, D.Sc
Professor Demeneix has been a tireless scientist and advocate for more protective policies that will improve public and ecological health.  We thank her for her leadership and dedication!

Barbara Demeneix, BSc, PhD, DSc

Professor Demeneix has been a tireless scientist and advocate for more protective policies that will improve public and ecological health.  We thank her for her leadership and dedication!

Membership

Our Global Community

We hope our educational courses, content and online communities can help us all feel a little more connected to each other. Become a member today so we can better support you while we work together during these unprecedented times.

We hope our educational courses, content and online communities can help us all feel a little more connected to each other. Become a member today so we can better support you while we work together during these unprecedented times.

Back to top
Short on time?

We'll come to you...

Get updates on the latest breakthroughs, clinical practice guidelines, and career development opportunities, straight to your inbox

Then take the next step: Set up your free website account and get exclusive access to even more great tools & content!